University of Toronto · FACULTY OF ARTS & HUMANITIES

PHLB09H3 Chap.4 Advance Directives and Dementia

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Chapter 4 of 11 · PHLB09H3

Advance Directives and Dementia

The question the week poses

Week five covers advance directives and substitute decision-making through Rebecca Dresser's article on Ronald Dworkin and dementia.

The oral exam question frames the topic as a dispute about scope: Dworkin and Dresser agree that directives exist, but disagree about how far a directive written while competent should govern care after dementia sets in.

The clinical framework

The CMA Code sets an order of standards for patients who lack capacity.

Physicians respect previously expressed wishes and values, whether recorded in advance care planning or conveyed by a substitute decision-maker. If those are unknown, they act on the values that can be discerned; if none can be discerned, they act in the patient's best interests.

The Code also asks physicians to support cognitively impaired patients' participation in decisions.

Why dementia is the hard case

A person with advanced dementia may seem content with a life the earlier self said they would not want. Dworkin, as quoted in another reading, treats momentous decisions about death as belonging to the individual.

Dresser's title calls his position elegant theory but questionable policy, so the debate turns on whether the earlier choice should bind the later patient.

In this chapter

What this chapter covers

  • 01

    Advance Care Planning

  • 02

    Substitute Decision-Maker

  • 03

    Discernible Values

  • 04

    Best Interests Standard

  • 05

    Earlier Self and Later Self

  • 06

    Scope of a Directive

Worked example · free

Choose the standard for an incapacitated patient

Q [6 marks]. AskSia-authored practice. A woman with advanced dementia needs a decision about a feeding tube. She left a written directive refusing artificial feeding, but her son says she now seems happy and asks the team to ignore it. Using the CMA Code's standards, set out what the team should start from and what the son must show to change the decision. The marks shown are an AskSia study allocation, not an official University marking scheme.
The top row shows the two selves the dementia dispute sets against each other, and the green ladder shows the Code's order of standards, falling from prior wishThe top row shows the two selves the dementia dispute sets against each other, and the green ladder shows the Code's order of standards, falling from prior wishes to discernible values to best interests only when the higher rung is unavailable.Earlier competent selfwrites the directiveLater self with dementiapresent interestshow far?1 · Prior expressed wishes and values2 · Discernible values3 · Best interests
The top row shows the two selves the dementia dispute sets against each other, and the green ladder shows the Code's order of standards, falling from prior wishes to discernible values to best interests only when the higher rung is unavailable.
  • 2Identify the applicable rung of the Code's standards.
  • 2Explain the son's argument in terms of present interests.
  • 2State what would be needed to depart from the directive.
Her previously expressed wishes are known, so the first standard applies and the starting point is to respect the directive. The son's argument appeals to her present well-being: if she now appears to enjoy her life, he suggests the earlier refusal no longer reflects her interests. To depart from the directive, the team would need a reason to think it does not apply to this situation, for example that its wording did not anticipate her present state, rather than simply a judgement that a different choice would be better for her. That tension between earlier choice and present interests is the heart of the Dworkin and Dresser dispute.
Sia tip — Name the rung of the decision standard before you argue; a recommendation that skips the prior-wishes step will be marked down as unstructured.
Glossary

Key terms

Discernible Values
Discernible values are the values that can be inferred from a patient's life and commitments when no explicit instruction exists.
Best Interests Standard
The best interests standard is the fallback basis for decisions when neither a patient's prior wishes nor discernible values are available.
FAQ

Advance Directives and Dementia FAQ

What does the CMA Code say about patients who cannot decide for themselves?

It asks physicians to respect the values and intentions a patient expressed while capable, through advance care planning or a substitute decision-maker. Where those intentions are unknown, physicians act on the patient's discernible values, and failing those, on the patient's best interests. It also asks physicians to support cognitively impaired patients' participation in their own care where possible.

What is the Dworkin and Dresser dispute about?

The oral exam question frames it as a disagreement over how much authority advance directives should have when the writer later develops dementia. The issue is how far a directive written by a competent person should govern decisions after dementia changes that person, especially when the later patient seems content with a life the directive rejected.

How should I prepare this oral topic?

Reread the assigned Dresser article and reduce Dworkin's argument to numbered premises. Then list the reasons Dresser gives against the premises she targets, and any case she uses. Practise a one-minute opening that states the dispute, then rehearse follow-ups, such as whether you find each argument persuasive, without needing to defend a view of your own.

Why is predicting one's own future so important in this debate?

An advance directive is a forecast: the writer predicts what a life with dementia would be like and decides in advance how it should be treated. The consent reading reports that healthy people predicted life on dialysis would be miserable, while patients rated their happiness close to healthy controls. Similar errors in forecasting could affect directives, which is one reason to ask how far they should bind.

Study strategy

Exam move

Draw the Code's three standards as a ladder from memory and attach one invented case to each rung. Write the conflict between earlier choice and present interests in two sentences, one for each side. Reread the Dresser article with a pen and number Dworkin's premises in the margin, marking each place Dresser objects.

Rehearse a one-minute opening aloud and a two-minute answer to the question of whether an earlier self may bind a later one.

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